It has been a long time since I have posted. On days I have time to sit down at the computer, I only have time to read my favorite blogs and then it is time to get back moving again. I love reading my friend's blogs and am so thankful I am to be able to keep up with all the amazing things God is doing!!!
We have had a really exciting few months. Grant is doing so very well!!! I am amazed and in such awe of his determination. He is running, beginning to talk AND he will identify ME in a crowded room as his mama!! He now loves to hug and instead of me asking him for a kiss, he will ask me and let me tell you it melts my heart.
Speaking of his heart - it is doing very well. We will follow up with the cardiologist next year and continue to watch his ASD. The biggest obstacle we are facing now is Grant needs major dental work. Under general anesthesia they need to do 7 caps and two extractions in addition to some nerve work. Grant's abscessed teeth do cause him some pain and make eating solid food difficult. His weight gain and growth have slowed down. Because of Grant's heart condition, we will have the surgery at a Children's Hospital in Atlanta - I am so very thankful for the pediatric dentist who has decided to go the extra 100 miles for Grant. We are praying (and would love for you to join us) that God would open some rather large doors for Grant's surgery. Our medical insurance will not cover Grant's general anesthesia (privately funded insurance plan), which means we are paying for 2.5 hours of surgery out of pocket - dental will cover only two of the caps. We are asking our medical insurance to please reconsider their decision to not cover dental anesthesia or for the hospital to cut us one heck of a deal! Right now our our insurance company feels like strapping him down 5 different times is a practical solution for his dental needs. ?
It has been very interesting because open heart surgery would not have cost nearly as much. We never knew anything about privately funded insurance plans until now. Grant is covered fully by our insurance, but if you read the fine lines of a privately funded plan, some things are not covered regardless of the law. But with that said, most things are covered and we are blessed with being able to see many wonderful doctors.
The dentist who has agreed to see Grant is a special medical needs pediatric dentist. He is encouraging us to get Grant tested for DiGeorge Syndrome. DiGeorge Syndrome is a syndrome where there is a deletion of the 22nd Chromosome. Grant dose have a few of the markers of DiGeorge, but I will be very surprised it the test is postive. I am so crazy about every single cell of his DNA and if he dose have DiGeorge, it will not change one single thing about the wonderful things God has planned for his life. This is one strongly determined and smart little boy.
Blessings
6 comments:
Praising God with you!
The Heads are praying with you! Let me know if you want ot talk to someone whose son has DiGeorge. He is such a cutie and doing well in school!
Thanks for the update. I've been thinking of you often. I pray things go well with the testing for Grant. I'd sure love to see some pictures. He is so cute.
I know what you mean about desiring to go back again. We knew even before returning home with Eva that we'd start the process real soon. We found Joy on a private list 5 months later. It is good for both of them to have each other, and so close in age. I'm so glad we did. Ivy was the "unexpected adoption" that started with Maggie, as you well know. We don't understand those paths, but now I know God showed us one to lead us to another. Email me if you want.
Just finally taking a breath and catching up with you all. Prayers for Grant and his upcoming dental surgery and the financial issues that come with it. I am delighted that he is doing well.
I can only imagine how busy your days are....I barely have time for anything with just 3 kids in the house these days!
Ashley, You were SUCH an encouragement to me the whole time I was in the hospital with Isabelle. Thank you for blessing me in that way! I'll be praying for Grant and for the insurance company to cover the cost. When will you be in Atlanta. I'd love to meet you. My sister is in Atlanta, so I might be able to arrange a visit while you are there. I thought I had your e-mail address but can't find it. Will you e-mail me at elainechorton@yahoo.com.
Hey, I saw your post on RQ. My son is having similar dental issues & I would love to talk with you about them. If you get a chance to message me, it would be great. We are in NW GA, so not too far from you. My email is djtkas@bellsouth.net
You have a beautiful family.
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